Not necessarily earnest though.
Many years ago, when I was studying my Special Ed course, I remember having a very brief discussion with one of my lecturers in regards to “harmful” treatments. We were discussing the fact that there are some promising interventions out there (in regards to Autism interventions) however there just wasn’t as much research to support these treatments as there is in regards to behavioural interventions.
Don’t get me wrong, I am definitely all in favour of behavioural based treatments. There is a long history and evidence base of behavioural interventions being highly effective in many different aspects. However I was just interested to see what the deal was with other interventions, and how could we really discount something, if it hadn’t been tested yet (another relevant blog post coming soon – I’m a Scientist!)
Her response was quite informative and I really learned something about science and research. In my mind, I was only considering ‘harmful’ interventions to be the ones that cause physical harm e.g. Students being rolled up into blankets and then suffocating. However she explained that ‘harmful’ interventions also could be interventions that were taking the time, money and place of proven interventions, and providing ineffective treatments, wasting the time and money that could have been spent on effective, evidenced-based treatments.
It was like a light switch. It made sense to me, and explained to me why some ABA providers were perhaps extremely vocal and adamant about the effectiveness of ABA.
I have been doing this for many, many years, and I am still learning to this day. By continuing my study towards becoming a BCBA, I am actually linking things together and things are falling into place even more. But this particular conversation has always stood out in my mind, and I take it with me in my work.
I wanted families to understand the importance of evidence-based treatments. And understand their rights and the types of questions they should ask when engaging with a service provider e.g. What are our goals? When do you review our goals? What measurement tools do you use to check the effectiveness of what you are doing?
I can completely empathise with families wanting to try anything and everything. And a lot of families have friends who may have tried different interventions, and have anecdotal reports about its effectiveness. I imagine I would be in the same boat as families, and want to try everything, and do everything in my power to help my children. Personally, I just want to be able to support families, and share with them the information I have learned over my time in this field, and hopefully provide them with good information.
I was always happy to be a consultant for families who had recently received a diagnosis, because I wanted to share with them the importance of evidence-based interventions, and the types of questions they should be asking service providers, and how if you aren’t happy with a service, you can move on to a different service (particularly if you are paying for a service).
I feel this type of information will be even more relevant in the future once the National Disability Insurance Scheme comes into play, and hope families can utilise the tools available to help them make informed decisions.